When a child is fully supported nutritionally by their feeding tube, we have no expectation that they will be eating orally. All of their nutritional needs are being met, so there is no expected hunger drive. And no hunger drive, means no eating. But, even in the absence of oral eating, there are some great things we can do to support the journey towards eating, without the actual act of chewing and swallowing.
“…when it comes time to consider whether or not weaning is safe for your child, naturally, you may have concerns about the way that a wean – particularly one that features the safe introduction of appetite by gradually reducing the number of calories put through a tube – would impact your child’s brain development. So, in an effort to answer these concerns, let’s take some time to understand two important principles.”
Over the years, I’ve talked with hundreds of parents who have spent hundreds of hours coaching their child to take hundreds of bites, only to watch those bites swirl around in the mouth and be spit right back out. And when all you want is for your sweet, tube-fed kiddo to take, enjoy, and actually swallow something, that experience can be endlessly – and I mean, ENDLESSLY – frustrating! After all, how hard can it be to swallow?
The do’s and don’ts of pre-weaning can be difficult to assess and navigate. In particular, many families wonder about their child’s tolerance of tube feeds and how they might adjust in order to make the experience more comfortable and conducive to oral intake. Blended diets, in particular, spark curiosity, so let’s take a look at how they might factor into your child’s pre-weaning stage.
While swallow studies are a useful piece of the puzzle surrounding whether or not your child is able to swallow food and drink safely, they rarely provide us with an absolute, comprehensive picture of what’s going on during typical mealtimes. So, let’s take a look at how swallow studies are conducted, what kind of insight they provide, and how we ought to interpret their results.
Being the parent of a toddler is exceptionally fun and rewarding. It can also be exhausting. Developmentally, toddlers are learning to be independent people. Having a toddler with a feeding tube brings its own set of challenges. How do we, as loving caregivers, help the toddlers in our lives with tubes get ready to participate in a wean during this sometimes challenging developmental stage?
